tag:blogger.com,1999:blog-3085597284217459353.post5113079697298869615..comments2023-05-26T07:20:12.377-04:00Comments on Our Little Miracle, Charlotte Amalie: EmploymentAmanda Khttp://www.blogger.com/profile/05585402236984731784noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-3085597284217459353.post-64806451356213693212011-05-07T22:48:24.798-04:002011-05-07T22:48:24.798-04:00My darling Amanda! I just love you!! Because of pe...My darling Amanda! I just love you!! Because of people like you who choose to share your personal struggles and experiences with others, people are coming to know and understand. I know that by reading Lori's blog and now yours, I have come to feel and understand in a way I couldn't have otherwise felt or understood. When I hear of a family close to loosing a child, or having preterm birth, my heart goes out to them. I haven't personally experienced either, and yet I feel a connection to their sorrows. Learning to weep, love, and comfort... to feel as best one can feel who hasn't experienced the same pain... that makes all the difference. Thank-you for sharing! I'm so glad I'm your friend. Although you can't see it, I'm sending a hug in your general direction! Love you, friend.Marthahttps://www.blogger.com/profile/16299887733768912036noreply@blogger.comtag:blogger.com,1999:blog-3085597284217459353.post-61234909511569819152011-05-07T13:02:18.428-04:002011-05-07T13:02:18.428-04:00Amanda,
I understand and have been there fighting...Amanda, <br />I understand and have been there fighting in that damn NICU too. Now I am in the throws of school, therapies, and IEPs. LOL! My Sam starts typical kindergarten along with Special Ed. kindergarten as well. I so hope he is ready. I'm scared but hopeful :). Our kids are fighters and survivors and so are we!!! Big hugs!Amy, John, Sam, and Frankhttps://www.blogger.com/profile/09082023623444732116noreply@blogger.comtag:blogger.com,1999:blog-3085597284217459353.post-67983385148818303842011-05-05T23:18:57.155-04:002011-05-05T23:18:57.155-04:00I tried to post last night and it got deleted so l...I tried to post last night and it got deleted so let me try again...<br />Amanda, Thank you for another beautiful post. I often share your posts with friends and family as I try to help them understand why it is so challenging sometimes to be a mom of a micropreemie. Please keep sharing, it is invaluable!<br /><br />Ellen, That episode of Grey's Anatomy did more harm than good for Prematurity awareness, especially micropreemies. The baby was a 23 weeker, she did not receive the steroid shots. According to that (very morbid) preemie calculator, she had a 14% chance of survival. I really enjoy Grey's and was afraid to watch it BUT, the baby was out of the NICU in 12 weeks and her whole NICU stay took place in 1 45 minute episode that had about 4 other subplots. There was one spot on meltdown in the first 5 minutes and the rest of it was skirted over and around. She had a PDA ligation and a Grade I IVH but that was all. She was released at 35 weeks (gestational age) with NOTHING, no oxygen, no monitors (even her carseat challenge was done with the doctors just watching her). Grey's Anatomy successfully made a 23 weeker look like just a teeny tiny termie who merely needed some time to grow. It was very frustrating to watch.Katyhttps://www.blogger.com/profile/01204518035543132517noreply@blogger.comtag:blogger.com,1999:blog-3085597284217459353.post-67548165878382350632011-05-05T11:52:52.911-04:002011-05-05T11:52:52.911-04:00I've never had to be in your situation, thank ...I've never had to be in your situation, thank God, and you've definitely educated me. You're doing a great job. I think there's definitely a need for education. My husband's cousin in Serbia gave birth about 2 months early, in March, and the psychological stress she placed on herself has been awful. She blames herself for the early birth and she's consumed with worry. She has a supportive family, but it would be better if there were more public resources and knowledge available to her. Then maybe she wouldn't feel so alone. (The baby is fine, by the way!) Anyway, keep on spreading your knowledge and experience. And keep posting those cute photos of CA!Eve W.noreply@blogger.comtag:blogger.com,1999:blog-3085597284217459353.post-49147412626342175642011-05-04T18:14:19.432-04:002011-05-04T18:14:19.432-04:00Apparently one of the regulars on Grey's Anato...Apparently one of the regulars on Grey's Anatomy had a baby born at 1 pound 1 oz. I don't know how they are going to handle it but maybe it will help with awareness.Ellenhttps://www.blogger.com/profile/03915108134753426167noreply@blogger.comtag:blogger.com,1999:blog-3085597284217459353.post-6712508920379521732011-05-04T15:42:05.021-04:002011-05-04T15:42:05.021-04:00Amanda, I know you didn't want to have to be t...Amanda, I know you didn't want to have to be the one to educate the rest of us about prematurity, but you're doing an AMAZING job. And I thank you. Because of what I've learned from your words and experiences, I've recently been able to be more aware and considerate and understanding of (and hopefully helpful to) other friends who are going through their own struggles involving premature babies.Sarahttps://www.blogger.com/profile/16237061449774553458noreply@blogger.com