She'll be examined this week again to make sure, but the progress from two weeks ago to last week was pretty significant. For those of you who are familiar with ROP, she went from Stage 1 Zone 2 two weeks ago to Stage 2 Zone 3 with 12 clock hours (R) and 10 clock hours (L) .
The team is split on whether or not she'll need the surgery. Some say it might regress, and others believe that if the ROP was going to regress, she would have done it last week. The surgery is simple-- just a laser that zaps (do lasers do anything other than zap?) the crazy blood vessels and stops them from growing. She'll go back on the ventilator, but it will be a quick on-and-off ventilator situation. Good news is, baby glasses are not nearly as ugly as they used to be. :)
Either way, surgery or not, we could use your prayers, support, and encouragement this week. This whole driving to the NICU is really getting old and both Peter and I are wearing out. He's tired of her being there, and I'm struggling with this week being her original due date.
We know that it's just a slight bump on the road, but we're tired from this journey and we'd like to stop traveling. Since that's not an option, we might need a listening ear or a comfortable shoulder for a moment or two this week.
Thank you so much for all you have done already. We sincerely appreciate your love and support.
I've nearly run the full gammit of emotions they tell you a situation like this produces--nearly...
ReplyDeleteLast night I hit angry. Feel free to join the party. As Lori so eloquently put it:
Sometimes it just plain sucks.
Love you guys--hold on. You know you are in our prayers and thoughts today. May this little one show us all again what a fighter she is--she gets it from her Mom don't ya know.
Sending much love from DC!
ReplyDeleteDuring the "good news" portion of Relief Society yesterday, no one really had anything to share, so I figured I'd take the opportunity to share Charlotte's good news about reaching the 5 pound mark. After church a number of women stopped me and wanted to hear her story. Just wanted to tell you this so you'll know that you, Pete and Charlotte have some extra prayers coming right now. :)
oh boo. BOO. literally the week before we were "supposed" to go home Jaylee contracted RSV. although difference circumstances I understand the feeling of "FOR THE LOVE!" i'll be thinking of you and praying for little C's eyes this week. if you end up needing surgery i've kept in touch with a mom from our NICU that had twins early (23 weekers), they both needed ROP surgery, she'd be a great resource to talk to. Her girls are 3 years old now.
ReplyDeleteI just started reading your blog; I was linked here by Hillary Calaway. I'm her sister-in-law. Even though I don't know you, I want you to know that you, your husband and little Charlotte will be in our prayers today. I hope her little eyes can continue to improve. What a miracle that she has made it this far! Your story is inspiring. Thank you for sharing your journey.
ReplyDeleteThis is why I must read this blog everyday...sorry about last week. Love you all!
ReplyDelete