OK, I'm fairly certain that someone switched my baby on the transport from the PICU to the ICS floor. Despite the fact that I walked the entire way with her, and that she has the same medical record number, it MUST be a different baby.
Charlotte Amalie is an interactive, smiley, happy, non-wretching baby these days. She's also breathing room air. For the past 30 hours, nothing but room air. It must feel fantastic to have those tubes and tape and everything off your face.
So yeah, I know I dragged my feet on the Nissen... I know, I threw a fit about her needing a g-tube... but I'm here to tell you, uhh, I was wrong. {Don't tell anyone}. It's only been a few days, so my opinion might change in the future, but I am documenting it now: this procedure has made a HUGE difference for Charlotte.
Charlotte's scheduled to come home sometime between Wednesday and Friday. The past two weeks in particular have been pretty difficult. We've gotten some rough news, we've weathered some crazy storms, but days like today, make it all OK.
Well, days like today, and long, long naps.
yeah! :)
ReplyDeleteNo matter how small! I still saw IT!!!!
ReplyDeleteYea! Charlotte! High five to No More asp pneumonia! That girl is just hitting her stride now! Great job Mom! Give her kisses from Miss Jill xoxoxo
I am a mixture of tears and smiles reading this post-- Congratulations and we're praying that she is home to stay this time.
ReplyDeleteI'm so glad she's doing well. Wow, breathing room air! Give her a big smile from me.
ReplyDeleteHallelujah, momma!!!! We knew this day would eventually come. I remember us having a brief chat about this very subject in the NICU late one evening...but dragging your feet and trying to do without the Nissen and G-tube is what every level-headed parent would do. Really, who wants their kid to have surgery?! You don't know unless you try. And thank God, if one option doesn't work there are always others. So enjoy the "new" Charlotte and most importantly, do fun baby things with her...remember, she doesn't know she has "accessories"--they have always been there in some form and are part of who she is. Hugs to all!!!!
ReplyDeleteYippee! Room air! Photo op? Pretty please? Share her beautiful smiling face with all these blog followers :)
ReplyDeletei love this post, with all of my heart.
ReplyDelete