We'll add that to the diagnosis list that Charlotte has running. Charlotte went in for a sleep study on Monday night and we were fully expecting that we'd get the go ahead to start weaning Charlotte off of her oxygen during the day. With any luck, we thought, maybe Charlotte would be off oxygen by the time we moved to California!
Bahahaha.
Charlotte's pulmonolgist called today saying that Charlotte has severe obstructive sleep apnea. She is referring us to ENT to see if they want to remove her tonsils and her adenoids. We're thinking the surgery should be scheduled in the next few weeks, if they decide to move on that. About 6-8 weeks after surgery, we'd do another sleep study, and if OSA is still observed, they would place her on CPAP during periods of sleep.
If ENT doesn't want to do the surgery, then we'll get started on the CPAP right away.
Any ideas on how you keep CPAP on a 13 month old? Should be awe.some.
Oh no...more surprises. Is this something that goes away as she gets older? Can she be off oxygen when she's not asleep?
ReplyDeleteAlso, sorry, it must be my aging eyes, but when you wrote CPAP, I read the second letter as "R." :-)
Oy. I am so sorry to hear that. I can't even imagine. I know that there are more modern/comfortable CPAP masks than the ones our NICU used, but still. I hope this gets resolved the best possible way. And here's to no more bumps in your road.
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