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Saturday, September 4, 2010

P is for Progress

Charlotte is doing much better these days. I keep saying that I hadn't realized how much she had regressed until I saw how well she was yesterday. Her downhill was so gradual that from day to day nothing was too extreme, but now that she is feeling so much better, I can see how sick she really had gotten.

Anyway-- she looks 100% better. She's being continuously fed through an ND tube (food goes into her intestines, bypassing the stomach). Since she no longer has food to aspirate, and her stomach is not irritated by reflux, her breathing is much less labored and she is requiring less oxygen. She still has not been seen by the general surgery team, but the neonatologists expect her to be on the surgery schedule the week of 9/13. So we'll hang out at CHOP until then.

Thanks for your continued love and support.


  1. I'm so relieved to read this post-- I'm sure seeing her back to her old self makes you feel so much more at peace. You all continue to be in my thoughts.

  2. glad to hear things are moving upwards. hope the surgery consult team shows up so you can get this thing on the road!

  3. Glad she is better. You have found the "downside" of not seeing what you think is the obvious. It is hard to see the changes when you are with her 24/7, especially when they're gradual. Hindsight is 20/20 and you are doing a great job!!!! Just wait until you see the changes from the Nissen/G-tube procedure--she will be a changed woman!!! And you'll be a more relaxed mom. Hugs to all!!!