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Thursday, January 20, 2011


Charlotte was released from CHOP and is now residing happily at home. She's currently on 20 hour continuous feeds, and gets four hours of freedom during the day. She's also taking miralax and erythromycin to help with gut motility.

Yum, yum.

Thank you all for your words of encouragement and support. We truly do appreciate every single comment, suggestion and virtual hug. You all deserve a great big pat on the back for this one. And for each and every moment of the past 10 1/2 months.

As sincerely and genuinely as possible, I thank you.


  1. I'm so glad she's home!

  2. I'm so glad she is home. Continuous feeds (or close to it) can work wonders. I haven't posted for the past few days but I've watched and prayed.