Today the doctors have started to wean Charlotte from SiPAP to CPAP. Every 12 hours, they give her a try at CPAP and they keep her there until she swears uncle. Today she lasted 2 hours and then had to go back to SiPAP. But each try is a move in the right direction.
For her to come home, she has a series of machines she has to concur, but this is her first step. The long road looks something like this: SiPAP to CPAP to High Flow Nasal Cannula to Nasal Cannula to plain ol' generic room air. She can come home on nasal cannula, but we're hoping she doesn't need it.
And she weighs 1825 grams (4 pounds, 0.3 ounces).
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ReplyDeleteI've been following your blog since the NYTimes article-- Your words and thoughts are right on and beautiful and are helping me recover from our 114 day NICU stay. My baby girl has been home for exactly 1 month today. Like Charlotte she has an older brother (he turned 3 four days after she was born) who struggled with having his baby sister in the hospital for 4+ months. He would tell people, "My baby sister, she lives in a box, she's not done yet". Ellie was born at 25 weeks 0 days and it was an adventure to get her home but we are home and you will be too. Home also has challenges, we've already had a nasty cold and ruptured ear drum even though we have mounted purell dispensers in every room of the house. The best moment ever is when you wake up with your baby and don't have to get dressed and go to the NICU. Ellie is on a nasal cannula but we live in Denver so the altitude doesn't help. It isn't a big deal (hint: just ask for B size canisters). Anyway, thank you for sharing your journey, people need to know about these miracles. I'm happy to offer any help or support that I can (although I know you are getting it from people who you actually know) especially around surviving the preschooler/ micropreemie dynamic.
ReplyDeleteShe is gorgeous. I am so happy she is doing well.
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